Epidermolysis Bullosa (EB)Research

Epidermolysis Bullosa (EB) is a group of genetic skin conditions which cause the skin to blister and tear at the slightest touch.

Painful open wounds and sores form where this exceptionally fragile skin is damaged. It is estimated there are 500,000 people living with EB worldwide or 1 in every 17,000 people.

EB is currently incurable.

Management of the treatment and dressing regime is therefore of the upmost importance. SMARS (silicone medical adhesive remover sprays) such as Trio Elite are recommended by medical professionals in cases of EB to avoid skin stripping and medical adhesive related skin injuries (MARSI) which are very common and prevalent in EB patients.

While adhesive dressings and tapes are not recommended in EB patients, they are sometimes necessary to fix in place non-adherent dressings, bandages and even clothing can become bonded to the skin by drying wound exudate. SMARS are excellent for facilitating smooth and painless release from the skin.

SMARS such as Trio Elite can be safely used in new born infants.

Elite™ is designed to release dressings without causing trauma or pain. It is the newest generation of adhesive remover that:

  • Releases adhesives faster and painlessly
  • Sprays exactly where you want it to and at any angle
  • Does not contain any propellant and so does not have any “cold shock” like other adhesive removers
  • Utilizes “bag in can” technology to eliminate wastage and be more cost effective.

It was introduced to the UK EB community during 2013 and, since then, has been adopted by patients worldwide.

Try a sample of Elite spray today

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Healthcare providers and EB nurse specialists advocate adhesive remover sprays

‘Silicone Medical Adhesive Removers have arguably revolutionized the process of safe and effective removal of medical adhesive products.’

‘Silicone Medical Adhesive Removers are invaluable for EB patient care.’

References

Denyer J: Reducing pain during the removal of adhesive and adherent products. Br J Nurs 2011, 20:S28. S30-S35.

El Hachem et al. Multicentre consensus recommendations for skin care in inherited epidermolysis bullosa Orphanet Journal of Rare Diseases 2014, 9:76

Great Ormond Street Hospital- Clinical Guidelines- Epidermolysis bullosa (EB): management of the newborn infant with EB